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Nursing Assistant UNIT 4 CHAPTER 22: CARING FOR PEOPLE WHO ARE TERMINALLY ILL Caring for the Terminally Ill  People die from many different causes at many different ages  Terminal Illness  Illness or condition for which there is no cure  AIDS  Cancers  Certain heart conditions  Chronic respiratory disorders  Kidney disorders  Liver disorders Caring for the Terminally Ill  In the past, most people with a terminal illness received care at home  All caregivers could do was make patient comfortable  We must allow person to live and die with dignity  When taking care of a dying person you should be aware of the power of listening and touch Stages of Grief  Grief  Mental anguish, specifically associated with loss  Dr. Elisabeth Kubler-Ross (1926-2004)  Psychiatrist  Wrote famous book, On Death and Dying  Worked specifically with terminally ill people  Identified distinct stages of grief Stages of Grief  Stage I: Denial  Occurs when the person is told they have a terminal illness  Person refuses to accept the diagnosis or feels a mistake has been made  Denial helps protect a person emotionally from overwhelming grief  This stage may last only a few minutes or until the person actually dies  Not your place to convince the patient that the illness exists  Be honest but neutral Stages of Grief  Stage II: Anger  Occurs when the person realizes that they are actually going to die  People may feel angry for different reasons  Each person handles anger differently  Some people are angry with themselves, and some make take it out on others  Do not take anger personally Stages of Grief  Stage III: Bargaining  Typically done on a very private basis by the patient  Person wants to “make a deal” with someone who has control over their fate  Person may want to live long enough to accomplish a goal or witness a specific event  The will to live can be a very powerful life force and may extend the persons life for many months  Allow the person to experience the feeling of hope that comes with this stage Stages of Grief  Stage IV: Depression  When the person fully realizes that death will be the end result  Person will be sad and may have regrets about things they were not able to do  Some are quite withdrawn and quiet  Normal part of process  Be supportive  Some people require medical intervention Stages of Grief  Stage V: Acceptance  When a person comes to terms with the reality of their own death  Is at peace with this knowledge  Complete unfinished business  Says goodbyes  Plan funeral service  Usually want to talk about their death  Some people gain acceptance months or years before it happens Wills  A will is a legal statement that expresses a person’s wishes for the management of their affairs after death  Person must be deemed competent when will is made to be valid  Many health care facilities offer assistance  You may witness wills  By signing you are just saying you watched the person sign Dying with Dignity  Advance Directives  Allows a person to make wishes know about health care decisions  Many pertain to “end of life issues”  May elect to avoid “life sustaining treatments”  Respiratory ventilation  CPR  Feeding Tubes Dying with Dignity  Advance Directives  May elect to have supportive care only  Will not prolong life but will make person more comfortable  Oxygen  Pain medication  ROM  Grooming  Hygiene Dying with Dignity  Advance Directives  DNR (do not resuscitate)  Also called a no-code  Only means CPR will not be performed to save a persons life Dying with Dignity  Hospice Care  Hospice organizations have the mission of offering the terminally ill person the best quality of life possible  Care is provided by a multidisciplinary care team  Doctors  Nurses  CNA’s  Clergy  Social Workers  Mental Health Professionals Dying with Dignity  Hospice Care  Team not only takes care of the patient, but takes care of family as well  After patient’s death, hospice provides grief counseling and other types of assistance to the family  Available to patient’s and families 24 hours a day 7 days a week  Care provided in patient’s home, long term care center, hospital, and hospice houses Dying with Dignity  Hospice Care  Care given is palliative care   Focused on relieving uncomfortable symptoms  Pain medications  Chemotherapy  Radiation  Oxygen  Surgery In no way is a terminally ill person is told to give up hope for recovery Dying with Dignity  Hospice Care   Can also assist with equipment  Hospital bed  Bedside commode  Mechanical lifts Focus of hospice team is to honor the wishes of the patient and family Effects of Caring for the Terminally Ill on the Caregiver  Caring for a terminally ill person will affect you  We actually go through the grief process  May feel inadequate when we watch others grieve  Make sure to take time for yourself  Use clergy and counseling services available  Openly talk about your feelings on death with friends and family