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RESPONSE TO THE FINAL REPORT OF THE CATASTROPHIC IMPAIRMENT EXPERT PANEL MAY 13, 2011 The Ontario Society of Occupational Therapists (OSOT) has reviewed the Final Report of the Catastrophic Impairment Expert Panel to the Superintendent, “Recommendations for Changes to the Definition of Catastrophic Impairment”, April 8, 2011. Our response to the proposed recommendations has been carefully considered by occupational therapists who have been involved in the catastrophic determination assessment process and who are experienced in assessing and treating adults and children with catastrophic and non-catastrophic injuries as defined by the Statutory Accident Benefits Schedule (SABS). The Society recognizes the mandate of the Expert Panel to review the definition of “catastrophic impairment” located in the SABS and to make recommendations for changes to the definition to ensure that the most seriously injured accident victims are treated appropriately. The Society has approached its review of the Panel‟s recommendations primarily with concern for, and attention to, the goal of assuring access to appropriate care and treatment for the most seriously injured. The Society understands that the Expert Panel developed its recommendations giving precedence to scientific evidence and judgment. While respectful of and acknowledging the relevance of science to outcomes, the Society forwards an insight into the dynamic nature and realities of the health system in which Ontarians injured in motor vehicle accidents experience treatment, rehabilitation and care through the lens of occupational therapists working in the clinical field. It is our hope that these insights will complement and augment the scientific basis of the recommendations of the Expert Panel, and ultimately, will contribute to a more equitable process for the determination of catastrophic impairment in Ontario‟s automobile insurance system. OSOT recognizes and applauds the following significant directions of the Panel‟s recommendations; The development of an interim catastrophic impairment status which will enable insured individuals with serious injuries to access the rehabilitation services they require to achieve their functional potential which may result in a final impairment level that is less than catastrophic. The recognition of the long-term developmental implications of traumatic brain injuries in the paediatric population and development of more age specific definitions of CAT impairment for this population. The recognition of the impact of having significant mobility concerns has on function. The proposed use of assessment systems with acceptable validity, reliability and predictive ability when determining presence of catastrophic impairment. We acknowledge the new tools recommended by the Panel and support their testing and validation for the proposed uses. 1 The Society offers the following comments and recommendations relating to recommendations of the Expert Panel….. Section 4 – Catastrophic Impairment Definitions “In summary, the Panel agreed that a catastrophic impairment is “an extremely serious impairment or combination of impairments that is expected to be permanent and which severely impacts an individual's ability to function independently. It was the opinion of the Panel that catastrophic impairment is not a medical entity; rather, it is a legal entity which defines a point along the medical spectrum of impairment severity.” (Section 4, page 13) OSOT response: We wish to emphasize that the Panel‟s definition states that a catastrophic impairment severely impacts the individual‟s ability to function independently. However, the Panel‟s recommendations continue to propose criteria for determination of catastrophic (CAT) impairment that focus on „impairments‟ instead of criteria that focus on determining whether someone‟s ability to function independently is severely impacted. This is inconsistent with other definitions within the SABS which determine eligibility to benefits based on function, e.g., „substantial inability to engage in‟ for housekeeping, essential work demands (IRB) and caregiving. The Panel acknowledges that impairment itself is not always predictive of function, and ability to function is not always explained by impairment alone. While it was the Expert Panel‟s opinion that catastrophic impairment is a legal entity, there was no review of legal precedents relating to the definition of this impairment. OSOT Recommendation: 1. Criteria for determination of catastrophic impairment should reflect the Panel‟s definition of catastrophic impairment: a. Impairment is serious and considered permanent, and b. The impairment or collection of impairments severely impacts the person‟s ability to function independently. 2. Given that CAT determination permits increased funding for the injured claimant, it is recommended that the threshold for catastrophic impairment should factor in the duration and cost of treating the condition and its functional implications. The Panel applied this same rationale, i.e. cost of treatment, when they proposed the concept of “interim catastrophic designation.” 3. A review of legal precedents should inform decision-making relating to the definition and criteria for determination of catastrophic impairment. 2 Section 4.1 Definitions – Paediatric definitions “Given the complexity of the issues, and the time constraints, the Panel determined that it was unable to adequately address adaptations to definitions 2 (e) (section 4.1.5) and 2 (f) (section 4.1.6) for the paediatric population. The Panel recognizes that adapting these definitions to the paediatric population is a priority and recommends that an Expert Paediatric Working Group be convened to address this issue as soon as possible. In the interim, the Panel recommends that the determination of catastrophic impairment for individuals younger than 18 years of age who sustain an impairment that is not covered by definitions 2 (a), 2 (b), 2 (c) or 3 be done by seeking the closest analogy using definitions 2 (e) and 2 (f) as well as the other adult definitions.” Section 4.1.1, Page 13 OSOT Response: OSOT supports the panel‟s reasoning and recommendation relating to the adaptation of the CAT definition to the pediatric population and further supports the need for a Paediatric Working Group to address the definitions for this population. OSOT Recommendations: 4. OSOT recommends that an occupational therapist, experienced in working with the paediatric population, considered by peers to be an expert in assessing and treating functional impairments in children, and who possesses familiarity with the developmental implications of catastrophic injury be included on this Expert Paediatric Working Group. Section 4.1.2 Interim Catastrophic Impairment Status “The Panel recommended that an interim catastrophic impairment status be created for patients whose impairments specifically meet or exceed the criteria outlined under definition 2(d), 2(e) (Traumatic Brain Injury) ….. The Panel also believes that a designation of interim catastrophic impairment status is necessary to balance access to higher level of funding necessary for early rehabilitation with the need to minimize the risk of patients being permanently designated as catastrophically impaired when there is a reasonable chance that they will cease to be catastrophically impaired.” Section 4.1.2, page 13. OSOT response: OSOT supports the recommendation for an interim catastrophic impairment status for the reasons outlined by the Panel. However, we have some concerns that the thresholds to achieve an interim catastrophic status, as outlined by the Panel (Section 4.1.6.1), will restrict the very individuals the interim status would serve to protect. Accordingly, OSOT positions that further attention is required to achieve fair and equitable criteria for this status and to review the timeframes for inclusion into the interim status. Furthermore, OSOT is concerned that extending the interim status to only those individuals who sustain traumatic brain injuries or major physical impairments excludes other categories of injury that may be equally well 3 served with immediate access to the financial benefits of catastrophic designation, such as those with spinal cord injury. Section 4.1.3 2(a) – Paraplegia/Tetraplegia: 2. For the purposes of this Regulation, a catastrophic, impairment caused by an accident is, 2(a) paraplegia or tetraplegia that meets the following criteria i and ii, and either iii or iv: i. The Insured Person is currently participating in, or has completed a period of, inpatient spinal cord injury rehabilitation in a public rehabilitation hospital; Section 4.1.3 2(a), page 14 OSOT response: OSOT cannot support the inclusion of criteria 2 (a) (i) for individuals who have sustained a spinal cord injury. The specific requirement that these individuals must participate in inpatient spinal cord injury rehabilitation in a public rehabilitation hospital is problematic for the following reasons; Inclusion of participation in an in-patient rehab program specific to spinal cord injury is geographically discriminating as specialized spinal cord injury rehabilitation programs are not accessible in all regions of the province, particularly in rural Ontario. Wait lists for access to specialized SCI beds may limit a client‟s access to early rehabilitation. Faced with wait lists, individuals may be discharged home, to another type of general rehabilitation program, to long-term care or temporary accommodation. Individuals with dual diagnoses may be ineligible for admission to specialized SCI rehab units and may be admitted to services to deal with their secondary diagnosis, e.g. mental health or orthopedic issues. While provincial waitlist data for access to spinal cord injury rehabilitation centres would indicate that approx 85% of persons with spinal cord injury do access in-patient rehabilitation services, there remains 15% of injuries that may not. In these cases and in others where claimants make choices to return home or to their community, individuals may access community based rehabilitation services with expertise in spinal cord injury. These community based services, which are typically not publicly funded, have been found to be effective in returning individuals back to home, community and the workplace. Success in rehab may be due in part to the community team‟s ability to assist their client and their families who are frequently significantly involved, in their own environment and with their own support networks. Notwithstanding the potential for successful rehabilitation outcomes in these programs, which are not in-patient spinal cord rehabilitation programs, individuals who participate actively in rehabilitation in the community would not meet the criteria for catastrophic designation. Individuals may have such significant limitations that they are not deemed rehabilitation candidates (for example a ventilator dependent individual or someone who has also sustained a TBI). Such individuals who are clearly catastrophically impaired would not 4 meet the criteria for designation. There may be circumstances in which an individual has been injured in the USA or out of Canada where there may not be a public hospital system similar to that of Ontario. This situation should not de facto cause the person to lose access to increased benefits resulting from CAT designation. In fact, an individual‟s financial need may increase to ensure payment for out-of-country services which would normally be covered by OHIP. This criteria has the potential to be both inappropriate and discriminatory when applied to claimants who do not meet the criteria as a result of limitations of the publicly funded health care system in their community. The potential exclusion of clients and the subsequent financial limitations to their ability to seek appropriate treatment when publicy funded in-patient spinal cord injury rehabilitation services are not regionally accessible challenges principles of fairness and equity. Current health system trends would suggest increasing attention to minimization of hospital stays and promotion of community based health services and rehabilitation. It would be prudent to ensure that criteria for the designation of CAT impairment are not dependent on health system service delivery models that may evolve. It is not unreasonable to vision a future in which some SCI patients go home after acute care to participate in either out-patient or community based programming , which may be either publicly or privately funded. OSOT is not aware of specific in-patient spinal cord injury rehabilitation services for children in Ontario. We assert that it is important that the criteria for CAT determination be applicable fairly and equitably for both adults and children. These examples give evidence of situations in which a seriously injured individual would not meet the criteria for designation. Section 4.1.3 2(a) iv – Paraplegia/Tetraplegia iv. The permanent ASIA Grade is or will be D provided that the insured has a permanent inability to walk independently as defined by scores 0–3 on the Spinal Cord Independence Measure item 12 (indoor mobility, ability to walk <10 m) (Catz A, Itzkovich M, Tesio L, et al. A multicenter international study on the spinal cord independence measure, version III: Rasch psychometric validation. Spinal Cord 2007; 45: 275–91) and/or requires urological surgical diversion, an implanted device, or intermittent or constant catheterization in order to manage the residual neuro-urological impairment. Section 4.1.3, 2(a) iv., page 14. OSOT response: The Society challenges the application of the ASIA Grade D as a criteria for catastrophic impairment for individuals who suffer incomplete spinal cord injuries for the following reasons; People who sustain an incomplete SCI may suffer severe neurological pain, spasms, bowel and bladder deficits, erectile dysfunction, impaired mobility, and inability to perform their personal care and activities and daily living. These factors indicate severe impact on the person‟s ability to function independently. To determine access to 5 catastrophic benefits based on 10 metres of indoor walking does not address the wholistic implications this diagnosis can have on an individual. A person with an incomplete spinal cord injury who requires mobility aids is not only limited in their ambulation but also in their capacity to manage other ADL skills as a result of their reliance on a mobility aid. Though an individual may be able to walk 10 metres, they may require significant home modifications and typically use several mobility aids depending upon the environment in which they need to function (e.g., crutches/canes, walkers, and wheelchair over longer distances), age, physical status and functional abilities. Their ability to sustain mobility with aids often requires intense and ongoing rehabilitation. This group should not be limited in their access to rehabilitation. Early rehabilitation and access to funding to support home/workplace modification is important but so too is access to rehabilitation over their lifetime, as the degree of independent or functional mobility tends to deteriorate with aging. The Spinal Cord Independent Measure (SCIM) was developed to improve upon the Functional Independence Measure (FIM) which was not sensitive to the SCI population. The SCIM was developed for hospital use in an acute care setting to track basic function before and after an in-patient rehabilitation program. It was designed for research and found to be a consistent, reliable, and valid scale for use in a clinical setting, not in a home or community setting. The SCIM is limited in its scope of assessment. We position it is not a reliable measure for home/community mobility. OSOT is not aware that research has validated the use of one component of the SCIM tool in isolation of other components as a prediction of outcome. Accordingly we are concerned about the splitting of one item (#12) from the SCIM measure from the subscale of “mobility”. The evidence or rationale for this decision is not apparent in the Panel‟s report. We question why there is not a recommendation to use the tool in its entirety. The rationale for excluding the impact that spinal cord injury has on self-care, respiration and sphincter management in this measure is also unclear. Catastrophic definitions using the ASIA scale will not address the needs of persons suffering from central cord syndrome, cauda equina or Brown Sequard‟s syndrome who experience upper limb limitations to a more significant degree than in lower limbs. They may be able to walk 10 metres but be severely limited in their functional ability to manage self care, balance, community mobility, etc. OSOT Recommendation: 5. OSOT recommends that all clients with complete and incomplete spinal cord injury be defined with catastrophic impairment. This provides access to increased levels of medical and rehabilitation services that are typically required by this seriously injured population for both early medical and rehabilitation management and those ongoing needs experienced over the lifespan. Section 4.1.6 2(d) - Traumatic Brain Injury in Adults (18 years of age or older): OSOT recognizes that two different approaches have been recommended for the determination of catastrophic impairment for persons with traumatic brain injury (TBI) to accommodate both the possibility that the government will accept the Panel‟s recommendation that an interim catastrophic status be approved and the possibility that it not be approved. 6 The Society assertively supports the recommendation for the designation of a interim catastrophic designation. Sections 4.1.6.1 2 (d) – TBI if Interim Catastrophic Impairment Status is Approved. 2. For the purposes of this Regulation, a catastrophic impairment caused by an accident is, i. An Insured is granted an interim catastrophic impairment status when accepted for admission to a program of inpatient neurological rehabilitation at a recognized neurological rehabilitation center (List of facilities to be published in a Superintendent Guideline). ii. Catastrophic impairment, based upon an evaluation that has been in accordance with published guidelines for a structured GOS-E assessment (Jennett, B. and Bond, M., Assessment of Outcome After Severe Brain Damage, Lancet i:480, 1975)49, to be: a) Vegetative (VS) after 3 months or b) Severe Disability Upper (SD+) or Severe Disability Lower (SD -) after 6 months, or Moderate Disability Lower (MD-) after one year due to documented brain impairment, provided that the determination has been preceded by a period of inpatient neurological rehabilitation in a recognized rehabilitation center (List of facilities to be published in a Superintendent Guideline) Section 4.1.6.1, page 17, OSOT response: Reviewers have found the recommendation of Section 4.1.6.1 (ii.) unclear. Mulitiple readers identified varying interpretations of this criterion. It is unclear whether it is an expectation that “the determination has been preceded by a period of in-patient neurological rehabilitation in a recognized rehabilitation centre” applies to all claimants regardless of their level according to the GOS-E or whether this requirement applies only to those with Moderate Disability Lower (MD-). We trust this is largely a documentation clarification as the Panel‟s rationale on page 18 of the Report identifies that “….any finding other than Vegetative must be associated with a preceding period of in-patient neurological rehabilitation.” It is OSOT‟s position that inclusion of the requirement for participation in an in-patient neurological rehabilitation program as a component of the criteria for determination of CAT impairment of adults with TBI is problematic. Occupational therapists report that an expectation that individuals will access in-patient neuro rehab services is not consistent with typical practice in Ontario. We suggest this requirement be removed for the following reasons: This criteria overlooks patients with multiple injuries from an accident that are often streamed into other types of rehabilitation programs to address other injuries (e.g., complex orthopedic)1 This criteria excludes those persons whose TBI may not be addressed while an inpatient and may not even be diagnosed until post-discharge. One journey of care that individuals with TBI may experience starts with stabilization of their injuries in an acute hospital setting with subsequent discharge home while they may be on a wait list for an in-patient neuro-rehab facility. Once home, the person is usually linked with a community therapy program and a care team is established. When a rehab bed eventually becomes available, the client, feeling adequately 1 Colantonio, A., LaPorte, A., Croxford, R., & Coyte, P. (2005). Who receives in-patient rehabilitation after traumatic brain injury? A population-based study. Archives of Physical Medicine and Rehabilitation, 86(10), e21-22. 7 supported in their community, may decline the in-patient experience. We question why emphasis should be placed on more expensive institutionally based services if care needs can adequately be supported in the individual‟s community. Further, we position that individuals who participate in active community based neuro rehabilitation should not be deprived of opportunity for interim catastrophic impairment designation. The literature supports that it is more effective to complete rehabilitation in the patient‟s own environment whenever possible, given the frequent difficulty in transferring and applying skills learned in the institutional environment to the community environment. OSOT asserts that if the rationale for requiring in-patient rehabilitation services was to assure access to neuro rehabilitation expertise, this argument is difficult to defend in light of the breadth of service and experience for TBI that can be accessed in many communities. We do not agree with the Panel‟s assertion that treatment in the community as opposed to in an in-patient program does not provide „expert rehab‟. There are instances where people with TBI are discharged home prior to any rehabilitation to be managed with supervision or to convalesce, particularly when there is no apparent need for neurosurgical intervention. This management approach does not, in and of itself, reflect the severity of the injury. The requirement for participation in an in-patient neuro rehabilitation program will exclude clients with severe TBI who are never „rehab-ready‟, do not meet the eligibility criteria for admission into an inpatient rehabilitation program, but who have significant medical and care needs and may have a need for attendant care over their lifetime. These individuals may go from the acute facility to a Long Term Care Facility, or may receive rehabilitation from community based fee for service professionals and improve their functional status sufficiently for family members to manage them at home or to enable them to be transferred to a facility which requires a lower level of care While occupational therapists would position that the ideal rehabilitation pathway for persons with TBI may include specialized neuro rehabilitation services in a rehabilitation centre, we position that in light of access to care issues, wait lists and geographic discrepancy with respect to local services, participation in a general rehabilitation program may be sufficient demonstration of the requirement for participation in in-patient rehabilitation. Currently there are only 109 adult TBI beds (Ministry of Health and Long-Term Care Report of the Trauma Expert Panel, 2006). We express concern that a requirement that any person with a TBI that wishes to be eligible for CAT impairment designation must participate in a specialized rehab program will place additional pressure on this limited number of publicly funded beds. There are other reasons why individuals injured with TBI choose NOT to receive therapy in an in-patient facility but stay in their local community such as ; cultural and religious reasons, distance from other family members, to meet unique needs such as an adult with developmental delay who is better in their familiar environment, an adult with prior psychiatric and/or behavioural problems, or adults with complex care needs who is better served in a familiar environment. Our reviewer‟s questioned the standardization of the GOS-E in relation to the time of administration. It is questioned whether an assessment at 3 months or 6 months to determine an interim CAT designation could be made sooner so as to enable a seriously injured individual to begin to access treatment, equipment, medications, supports, etc. as soon as possible to support their rehabilitation and recovery. 8 OSOT Recommendations 6. In the spirit of assuring fairness so that individuals who are the most seriously injured in motor vehicle accidents receive appropriate treatment, OSOT recommends that the criteria 2 (d) (for TBI in adults if interim CAT impairment approved) be amended to require; i) that an individual be admitted to a hospital and have positive findings on CT, MRI or PET scan or any other braining imaging technology indicating intercranial pathology that is the result of the accident. ii) Catastrophic impairment, based upon an evaluation that has been in accordance with published guidelines for a structured GOS-E assessment (Jennett, B. and Bond, M., Assessment of Outcome After Severe Brain Damage, Lancet 49 i:480, 1975) , to be: a.) Vegetative (VS) after 3 months or b.) Severe Disability Upper (SD+) or Severe Disability Lower (SD -) after 6 months, or Moderate Disability Lower (MD-) after one year due to documented brain impairment. The Panel has recommended that a child admitted to a special trauma or rehabilitation centre. We position that an adult with a TBI admitted to an in-patient neuro rehab program should automatically be deemed CAT or at very least interim CAT. Section 4.1.6.2 2(d) If Interim Catastrophic Impairment Status is not Approved 2d: Traumatic Brain Injury in Adults (18 years of age or older): “The GOS-E has strong psychometric properties and it is particularly reliable when a structured interview, standard scoring algorithm and a quality control system are used to The impairment is deemed to be catastrophic, when determined in accordance with monitor itsguidelines administration and scoring” (Appendix) published for a structured GOS-E assessment (Jennett, B. and Bond, M., Assessment of Outcome After Severe Brain Damage, Lancet i:480, 1975)49, is: “…the panel recognized that this finding, made in isolation, might be problematic and i. Vegetative (VS) after 3 months, or consequently stipulated that any finding other than Vegetative must be associated with a ii. Severe Disability Upper (SD+) or Severe Disability Lower (SD-)these after features 6 months, preceding period of inpatient neurological rehabilitation. In combination, will or increase the sensitivity and specificity of the determination, and reduce any variability iii. Moderate Disability Lower (MD-) after 1 year, provided that the determination which might arise from reliance upon the GOS-E definitions, when discriminating Moderate has been preceded by a period of inpatient neurological rehabilitation in a (Lower) from lesser rehabilitation levels of impairment. requirement of a preceding period of recognized center (ListThe of facilities to be published in a inpatient rehabilitation also ensures that the patient has been exposed to and has engaged Superintendent Guideline) in an appropriate level Section 4.1.6.2, page 17of expert rehabilitation before a determination is made.12, section 2).” Section 4.1.6 Rationale for revisions of 2 (d), page 18. OSOT response: As above, the Society positions that the qualifier that all but those deemed Vegetative as per the GOS-E have participated in an in-patient neuro-rehabilitation program, is not appropriate for the reasons noted above. 9 OSOT submits that persons in the category of Moderate Disability Upper (MD+) suffer from: o o o Reduced work capacity Able to participate in < half their pre-injury leisure/social activities Family/Friends disruptions are at least weekly and intolerable This too describes an individual with significant dysfunction as it relates to his/her brain injury. OSOT recommends that, rather than using an in-patient stay as a secondary criteria, the person should undergo assessment which may include neuropsychological assessment in combination with cognitive/functional assessment, which must include client effort and symptom validity measures, to ensure that the person meets this criteria. It is our position that expert, timely and coordinated rehabilitation in the community, including multi-disciplinary services, can be found in many communities across the province. There is not, in our opinion, a need to restrict access to rehabilitation to inpatient services for the purposes of accessing specialized care. We challenge the premise that participation in an in-patient rehabilitation program is the best predictor of future function, or future costs or duration of treatment. OSOT Recommendations: 7. In the spirit of assuring fairness so that individuals who are the most seriously injured in motor vehicle accidents receive appropriate treatment, OSOT recommends that the criteria 2 (d) (for TBI in adults if interim CAT Impairment status not approved) be amended to require; a. Catastrophic impairment, based upon an evaluation that has been in accordance with published guidelines for a structured GOS-E assessment (Jennett, B. and Bond, M., Assessment of Outcome After Severe Brain Damage, Lancet i:480, 1975 )49 , to be: a.) Vegetative (VS) after 3 months or b.) Severe Disability Upper (SD+) or Severe Disability Lower (SD -) after 6 months, Moderate Disability Lower (MD-) and Moderate Disability Upper (MD+) assessment which may include neuropsychological assessment in combination with cognitive/functional assessment, which must include client effort and symptom validity measures 8. The Panel has recommended that a child admitted to a special trauma or rehabilitation centre. We position that an adult with a TBI admitted to an inpatient neuro-rehab program should automatically be deemed CAT or at very least interim CAT. 9. Include MD-upper as the cut-off level of disability identified by the GOS-E for the purposes of determining CAT impairment. 10. OSOT recommends that, rather than using an in-patient stay as a secondary criteria for MD - and potentially MD+, the person should undergo assessment which may include neuropsychological assessment in combination with cognitive/functional assessment, which must include client effort and symptom validity measures, to ensure that the person meets this criteria. 10 Section 4.1.7 2 (e) – Oher Physical Impairments The Panel explained, “Moreover, we found no literature supporting the use of a 55% WPI threshold as a cut-point for catastrophic impairment status. However, we note that 55% WPI is the score given to paraplegia, which the Panel agreed was a reasonable exemplar of the catastrophically impaired accident victim.” Section 4.1.7, Rationale for revisions of 2(e), page 19. OSOT response: OSOT challenges the position that 55% WPI, which is a score given to paraplegia, should set the bar for all catastrophic determinations. This “bar” was set in 1996 with the knowledge that at the time $100,000 (plus assessment costs) was available to all victims for medical and rehabilitation benefits and the limit for attendant care benefits was $72,000. The recognition that individuals with catastrophic injuries would require in excess of these funding limits resulted in access to $1 million. Fifteen years later, benefits have now been reduced and most related costs have increased; it would be reasonable to decrease the CAT threshold to capture the increased number of individuals who will require more than the current $50,000 medical rehabilitation benefit limit. “The Expert Panel did not find that combining physical and mental/behavioural conditions can be achieved in a valid and reliable way with the currently available methods of impairment cross-rating. Moreover, the Expert Panel did not find sufficient evidence that combined impairment ratings are more clinically meaningful than using separate criteria. While 55% physical impairment establishes paraplegia as a prime example of catastrophic impairment, we did not find evidence for an equivalent threshold when physical and mental/behavioral impairments are combined. The Panel had difficulty understanding how combinations of physical impairments and psychological conditions that independently do not meet the criteria outlined in the revised version of 2(e) and 2(f) could be equated to a severe injury to the brain or, spinal cord or to blindness. Further investigation of this area is needed. Specifically defining a clinically comparable combined psycho-physical whole person impairment threshold that corresponds to the currently accepted physical threshold is needed. Therefore, until further scientific evidence is gained, we recommend that separate criteria and methods of evaluation be used for the determination of catastrophic impairment and that physical and psychiatric impairments not be combined for the purpose of catastrophic determination.” Executive Summary, page 4. OSOT response: The literature consistently describes a link between psychological distress and chronic physical disability and/or chronic pain2. According to Turner and Noh (1988), the disabled are at dramatically elevated risk for depressive symptoms and that this high level of depression characterizes both men and women of all ages. Longitudinal analyses show eventful stress, chronic strain, mastery, and social support to be significant determinants of depression in this 2 Physical Disability and Depression: A Longitudinal Analysis, Turner and Noh, Journal of health and social behaviour, 1988, Vol 29, March 23-37 11 population. Only the effects of mastery and social support, however, are clearly observable within all age groups. Additionally, there has been legal precedent set in Ontario with respect to combining physical and psychological scores. Bambers3, for example, provided an update on catastrophic impairment and a review of legal decisions (2009) that have challenged the use of combining physical and psychological disabilities since Desbiens. 4 Bambers stated, “In the meantime, insurers will have to consider the possibility that minor or modest psychological impairments could render insureds catastrophically impaired when combined with physical injuries which in and of themselves would be non-catastrophic. Insurers can seek some solace in the fact that not all insureds that qualify as catastrophically impaired by combining physical and psychological impairments, will require the increased benefits provided by the scheme”. OSOT Recommendation: 11. Until such time that evidence disproving catastrophic impairment for individuals experiencing both physical and psychological disabilities is provided, OSOT maintains the position that physical and psychological disabilities should be combined. Guidance should be sought from legal precedent. Further study is recommended. Section 4.1.7 2 (e) – Other Physical Impairments (not covered by 2(a), 2 (b), 2 (c) or 2 (d)) Proposed definition: 2. the purposes of this Regulation, a catastrophic impairment by an accident iii.For Definition 2(e), including subsections I and II, cannot be used caused for a determination of is, catastrophic impairment until two years after the accident, unless at least three months 2after (e): the A physical impairment combination of physical impairments in accordance accident, there is a or traumatic physical impairment rating of that, at least 55% WPI and with the American Medical Association’s Guides to the Evaluation of Permanent Impairment, there is no reasonable expectation of improvement to less than 55% WPI. 4th edition 1993, (GEPI-4), results in a physical impairment rating of 55 per cent whole person Sectionimpairment 4.1.7, page(WPI). 18. i.The Unless covered by no specific rating guidelinesthe within relevant of Chapters 3-13 panel “…found literature supporting use of a 55%Sections WPI threshold as a cut-point of all impairments relatable non-psychiatric and is syndromes forGEPI-4, catastrophic impairment status. to However, we note symptoms that 55% WPI the score (e.g. given to functional somatic chronic pain syndromes, chronic fatigue syndromes, paraplegia, which syndromes, the Panel agreed was a reasonable exemplar of the catastrophically fibromyalgia Syndrome, etc.) ariseliterature from thereview accident are to be understood to have impaired accident victim. Thethat Panel’s suggests that the reliability of the been into theatweighting of the GEPI-4 physical impairment set out in AMA incorporated Guides is moderate best in patients with either low back pain or ratings major trauma Chapters 3– 13. (Appendix 12, section 1).” Section 4.1.7, Rationale for Revision of 2 (e), page 19. ii. With the exception of traumatic brain injury impairments, mental and/or behavioural impairments are excluded from the rating of physical impairments. OSOT response: We note little to no evidence in the report that outlines the Panel‟s methodology for continuing with a 55% threshold particularly in contrast to their diligence in other areas. For example, how was this literature review conducted? 3 Rita Bambers (2009). An update on catastrophic impairment. Retrieved May 11, 2011 from http://www.duttonbrock.com/dutton/news/mm/1_161.pdf 4 [2004] O.J. No. 4735 (S.C.J.) 12 Given their consensus that the definition of „catastrophic impairment status‟ is a legal entity, it is unclear why relevant legal decisions and cases were not reviewed or legal consultation sought. It is unclear why Chapter 15 on Pain from the AMA Guides 4 th Edition has been excluded given the Panel‟s recommendation that all pain disorders should be included under this criteria. The Panel identifies the need for research to determine how to most appropriately rate Whole Person Impairment scores for various psychophysical combinations but does not recommend a working group to address this area nor defer to legal consultation to inform the Panel of relevant case decisions There is evidence in the literature that suggests a strong correlation between physical disability and psychological sequelae In the absence of evidence indicating otherwise, guidance should be sought from legal precedence and further study recommended. Section 4.1.7 2 (e) If Interim Catastrophic Impairment Status is Approved 2 (e) iv. Interim catastrophic impairment status is deemed to apply to any patient whose traumatic physical impairment rating is at least 55% WPI, when that determination is made at least three months after the accident date. v. Interim catastrophic impairment status ceases to exist as soon as a final determination has been made, in accordance with Criterion III guidelines, and in any event no later than two years after onset. Section 4.1.7, page 19. OSOT recommendations: 12. OSOT supports the need for the interim determination to ensure access to early rehabilitation which promotes maximal medical recovery for persons with traumatic physical impairments. Section 4.1.8 2 (f) – Psychiatric Impairment 2. For the purposes of this Regulation, a catastrophic impairment caused by an accident is, 2(f) psychiatric impairment that meets the following criteria: i. The post-traumatic psychiatric impairment(s) must arise as a direct result of one or more of the following disorders, when diagnosed in accordance with DSM IV TR criteria: (a) Major Depressive Disorder, (b) Post Traumatic Stress Disorder, (c) a Psychotic Disorder, or (d) such other disorder(s) as may be published within a Superintendent Guideline. Section 4.1.8, page 20. OSOT response: 13 OSOT submits that the list of diagnoses contained in 2 (f) i is not inclusive of all the diagnosis that should be considered catastrophic. For example, conversion disorder can produce significant disability. Further, OTs are uncertain how or if this particular definition in (i) would apply to children 18 years or younger. OSOT recommendations: 13. ii. An expert panel should be struck to investigate a 2(f) determination with in-depth study regarding the psychiatric conditions typically arising from trauma. Impairments due to pain are excluded other than with respect to the extent to which they prolong or contribute to the duration or severity of the psychiatric disorders which may be considered under Criterion (i) OSOT response: Chronic pain literature is clear on the debilitating effects that pain can have on function. 5 OSOT submits that conditions such as chronic pain disorder can be the result of injury(ies) sustained in a motor vehicle accident and, based on our members‟ collective experience, this disorder can result in significant client dysfunction and family upheaval. OSOT recommendation: 14. OSOT recommends that chronic pain disorder combined with a GAF score of 50 or under be considered catastrophic. iii. Any impairment or impairments arising from traumatic brain injury must be evaluated using Section 2(d) or 2(e) rather than this Section. iv. Severe impairment(s) are consistent with a Global Assessment of Function (GAF) score of 40 or less, after exclusion of all physical and environmental limitations. OSOT response: OSOT submits that a GAF assessment itself addresses a “range” in scoring rather than a specific score, and there is wide variability from assessor to assessor.6 As well, the GAF is meant to provide a “snap-shot” of the person at one time as opposed to a long term forecast of function. Finally, the GAF test result can vary dependent on what sphere of function is being examined. 5 The Effects of Depression and Chronic Pain on Psychosocial and Physical Functioning,Holzberg, Amy D. Ph.D.; Robinson, Michael E. Ph.D.; Geisser, Michael E. Ph.D.; Gremillion, Henry A. D.D.S.,Clinical Journal of Pain, June 1996, Vol 12, Issue 2, 118 - 125 6 Psychiatr Serv 56:434-438, April 2005, © 2005 American Psychiatric Association Special Section on the GAF: Reliability of Global Assessment of Functioning Ratings Made by Clinical Psychiatric Staff, Per Söderberg, M.Sc., Stefan Tungström, M.Sc. and Bengt Åke Armelius, Ph.D. 14 For the reasons above we urge caution in establishing a GAF score criteria that is too low (40 or less). It was noted at the public consultation that the State of California has found that a GAF of 39 – 50 is consistent with a 55% WPI rating. OSOT recommendation: 15. v. Should the government concur with the panel‟s findings about relying on the GAF Assessment, OSOT submits that the GAF cut-off should be 50 rather than 40. A GAF score of 50 describes “Serious symptoms (e.g., suicidal ideation, severe obsessional rituals, frequent shoplifting) OR any serious impairment in social, occupational, or school functioning (e.g., no friends, unable to keep a job).” This would indicate a need for a substantive level and duration of treatment. For the purposes of determining whether the impairment is sufficiently severe as to be consistent to Criterion (iv) - a GAF score of 40 or less - at minimum there must be demonstrable and persuasive evidence that the impairment(s) very seriously compromise independence and psychosocial functioning, such that the Insured Person clearly requires substantial mental health care and support services. In determining the demonstrability and persuasiveness of the evidence, the following generally recognized indicia are relevant: a. Institutionalization; b. Repeated hospitalizations, where the goal and duration are directly related to the provision of treatment of severe psychiatric impairment; c. Appropriate interventions and/or psychopharmacological medications such as: ECT, mood stabilizer medication, neuroleptic medications and/or such other medications that are primarily indicated for the treatment of severe psychiatric disorders; d. Determination of loss of competence to manage finances and property, or Treatment Decisions, or for the care of dependents; e. Monitoring through scheduled in-person psychiatric follow-up reviews at a frequency equivalent to at least once per month. f. Regular and frequent supervision and direction by community-based mental health services, using community funded mental health professionals to ensure proper hygiene, nutrition, compliance with prescribed medication and/or other forms of psychiatric therapeutic interventions, and safety for self or others. Section 4.1.8, page 21 OSOT response: OSOT submits that, in the practical world, admission to hospital or institutionalization occurs rarely for those persons with mental and behavioural disturbances given the social stigma of mental illness. Furthermore, the decision to admit or not to admit a person to an institution or mental health hospital is a multi-factorial one which includes the person‟s support network including treating psychiatrist and family members. Given the variability of rationale surrounding this decision, admission should not influence the decision around catastrophic impairment designation in either direction. 15 With respect to accessing a psychiatrist in Ontario or a mental health bed, there is a known shortage of this specialty across the province, but in particular in northern Ontario. Reference: http://www.bipolarworld.net/Bipolar%20Disorder/Articles/art45.htm Similarly, community-based mental health services, again, are not predictably accessible. OSOT would assert that a CAT designation should not hinge on economic factors nor the availability of community-based, pubically-funded services. Section (v) lists six indicia deemed relevant but does not reference how many must be evidenced or met prior to assigning a CAT designation. We believe this leaves this section open to interpretation and therefore, limited in its useful application. Section 4.1.10 3 – Traumatic Brain Injury in Children Paediatric Traumatic Brain Injury (prior to age 18) “i. A child who sustains a traumatic brain injury is (automatically) deemed to have sustained a catastrophic impairment automatically provided that either one of the following criteria (a or b) is met on the basis of traumatic brain injury sustained in the accident in question: a. In-patient admission to a Level I trauma centre with positive findings on CT/MRI scan indicating intracranial pathology that is the result of the accident, including but not limited to intracranial contusions or haemorrhages, diffuse axonal injury, cerebral edema, midline shift, or pneumocephaly; or b) In-patient admission to a publically funded rehabilitation facility (i.e. an Ontario Association of Children’s Rehabilitation Facility or equivalent) for a program of brain injury rehabilitation.” Section 4.1.10, 3, page 22. Paediatric catastrophic impairment on the basis of traumatic brain injury is any one of the following criteria: ii. At any time after the first 3 months, the child’s level of neurological function does not exceed the KOSCHI Category of Vegetative (Crouchman M et al., A practical outcome scale for paediatric head injury. Archives of Disease in Childhood 18 2001; 84:1204) : The child is breathing spontaneously and may have sleep/wake cycles. He may have non-purposeful or reflex movements of limbs or eyes. There is no evidence of ability to communicate verbally or non-verbally or to respond to commands. iii. At any time after the first 6 months, the child’s level of function does not exceed the KOSCHI Category of Severe (Crouchman M et al., A practical outcome scale for 18 paediatric head injury. Archives of Disease in Childhood. 2001; 84:1204) : (1) The child is at least intermittently able to move part of the body/eyes to command or 16 make purposeful spontaneous movements; for example, a confused child pulling at nasogastric tube, lashing out at caregivers, or rolling over in bed. (2) May be fully conscious and able to communicate but not yet able to carry out any self-care activities such as feeding. (3) Severe Impairment implies a continuing high level of dependency, but the child can assist in daily activities; for example, can feed self or walk with assistance or help to place items of clothing. (4) Such a child is fully conscious but may still have a degree of post-traumatic amnesia. b iv. At any time after the first 9 months , the child’s level of function remains seriously altered such that the child is for the most part not age appropriately independent and requires supervision/actual help for physical, cognitive and/or behavioural impairments for the majority of his/her waking day. OSOT Response: While the Society supports the recommendation that a child who sustains a traumatic brain injury be considered for automatic CAT designation, we contest the requirement for admission to a Level 1 trauma centre or publicly funded rehabilitation facility for a brain injury rehabilitation program. The rationale has been interpreted in relation to other categories but holds for the paediatric population as well. Access and systemic capacity issues should not play a factor in the designation of a catastrophic impairment. It is noted that injured children may be seen in an emergency room but if stabilized thereafter sent home only to experience problems impairing their function later. Early brain imaging is critical to provide evidence of intracranial pathology that can be attributed to the injuries sustained in the accident. OSOT supports the recommendation for use of the KOSCHI Scale however, as the Panel points out that the scientific evidence on the psychometric properties of the KOSCHI are preliminary there is concern about implementing this tool prior to its validation. OSOT applauds the suggestion that more study is required into the use of the KOSCHI and recommends that Occupational Therapy be part of this investigation. As noted above with respect to adult assessment using the GOS-E, we query the potential to assess children with the KOSCHI earlier, for example, at 1, 3 and 6 months. In light of the severity of impairment that they are measuring at these key milestones post injury it can be anticipated that children classed as Vegetative or Severe or have their function still seriously altered at 6 months will have significant medical and rehabilitation needs that reasonably need access to a higher threshold of funding. It is important to ensure that the CAT criteria are developed by FSCO with appropriate stakeholder input, and not liable to change based upon unrelated public health care policies or funding. For e.g., if more inpatient rehabilitation beds become available, and therefore the admission criteria are lowered to accept less severe patients, this should not impact the CAT Definition. Alternatively, if there are funding cuts, or an increase in referrals for any other reason, and hospitals can only accept the very most severe, this should not affect the CAT Definition. A case study demonstrates some of the concerns raised: 17 CASE #1 Katy M. was 4 years, 1 month old at the time of the accident on November 17, 2005. Unfortunately she was run over by her mother when backing out her SUV from the garage when Katy ran out the front door and behind her mother‟s car. It was felt that the ties of her hat possibly choked her when she was run over. Glasgow Coma at the scene was 13 and decreased to 10 in the ambulance on the way to the local hospital in North Bay. Two hours later the GCS was 12/15. Katy remained in CCU for 3 days and then transferred to a regular ward. She was discharged home on November 25, 2005. Injuries suffered as a result included: 1) Bilateral pulmonary contusion and hemorrhage 2) Multiple lower right pulmonary laceration with pneumothorax 3) Suspicious intraparenchymal right chest tube 4) Multiple and full severe thickness laceration of the liver 5) Multiple small peripheral splenic lacerations 6) Extensive paracolic hematoma 7) Right colon contusion with extensive hematoma 8) Query fracture of head of right humerus No radiological studies were done on the head at the time of the accident. Subsequent CT Scans done six months post-accident due to behavioural changes indicated minimal to moderate axonal damage. Pre-accident, Katy was not attending pre-school and was at home with her grandmother. She was slated to start Kindergarten next year. Her parents and grandparents (who live with the family) stated that she was a very bright and sociable youngster who enjoyed looking at books, was recognizing all her letters and numbers (1-10) as well as some simple words and her name in print. She was riding a two-wheeler with training wheels and enjoyed drawing, colouring, going to the park to play with peers and swimming. Since the accident, Katy has been observed to be more emotional, to forget new learning concepts, to have a weaker memory, to have less concentration and focus, some word finding difficulty and to be more argumentative. She is now in grade 4. Katy‟s teacher reported that Katy‟s reading, spelling and creative writing skills are below the class average and that she is restless and needs a lot of assistance to initiate and complete tasks. Math is becoming more problematic. Katy‟s parents discussed that they do extra homework daily to help Katy keep up with her school studies. The teacher also shared that Katy has difficulty sitting for more than 20 minutes at a time and settling when coming in from recess. Socially, Katy gets easily frustrated when she cannot produce work to her satisfaction; she cannot get her way and can be verbally aggressive with peers and family. This is isolating her at recess and she is not invited to birthday parties. Parents find that she has little insight into her behaviour and find it difficult to reason with her. Standardized testing by the school occupational therapist showed below average skills in visual-motor integration, fine motor control, visual memory and visual sequential memory and visual discrimination. Investigation into sensory processing showed difficulties with body awareness in space, vestibular and proprioceptive seeking behaviour. She was recently given a CAT designation. OSOT Recommendations: 16. In the spirit of assuring fairness so that children who are the most seriously injured in motor vehicle accidents receive appropriate treatment, OSOT recommends that the criteria 3 (i) (a) and (b) be replaced with: 18 a) Admission to a hospital and have positive findings on CT, MRI or PET scan or any other braining imaging technology indicating intercranial pathology that is the result of the accident. 17. That if the KOSCHI is to be administered to a child after 6 months, the KOSCHI should be administered by a physician with paediatric experience and a health professional approved to complete an Attendant Care Assessment. Those performing the Attendant Care Assessment must have clinical paediatric TBI and paediatric attendant care assessment experience. All assessors should be also be provided with all the relevant documentation available. The physician and/or neuropsychologist input is needed in order to clarify the diagnosis, and that the problems experienced are related to the accident. An Attendant Care Assessment (which according to the SABS can only be done by an OT or Nurse) is needed in order to obtain an objective measure of the attendant care required, including an opinion on the number of hours during the waking day the child requires supervision/actual help for physical, cognitive and/or behavioural impairments, and an opinion on whether that care is considered normal parenting, or over and above normal parenting, based upon the age of the client). 18. OSOT supports further study of the psychometric properties of the KOSCHI. In this regard, we propose that the GCS be used until such a time as the KOSCHI has been shown to be a valid and reliable outcome measurement assessment tool. 19. We recommend that children with subtle injuries that will become serious sources of impairment over time will need access to a CAT attendant care/KOSHI or adult CAT criteria assessment to be assessed for eligibility for CAT designation and should have access to such assessment until the age of 21. OTs recognize that some children will have a delayed manifestation sometimes spanning decades in the case of infants whose impairments of cognition, emotion or behavioural regulation may not fully express themselves until late teen years. 20. OSOT recommends that children be assessed with the KOSCHI as early as is valid so as to enable early identification of their status. 21. That children with a significant pre-existing diagnosis at the time of the injury still be considered catastrophic based on their presentation and clinical findings and not be excluded from this group. Summary of Recommendations 1. Criteria for determination of catastrophic impairment should reflect the Panel‟s definition of catastrophic impairment: a) Impairment is serious and considered permanent, and b) The impairment or collection of impairments severely impacts the person‟s ability to function independently. 2. Given that CAT determination permits increased funding for the injured claimant, it is recommended that the threshold for catastrophic impairment should factor in the duration and cost of treating the condition and its functional implications. The Panel applied this same rationale, i.e. cost of treatment, when they proposed the 19 concept of “interim catastrophic designation.” 3. A review of legal precedents should inform decision-making relating to the definition and criteria for determination of catastrophic impairment. 4. OSOT recommends that an occupational therapist, experienced in working with the paediatric population, considered by peers to be an expert in assessing and treating functional impairments in children, and who possesses familiarity with the developmental implications of catastrophic injury be included on this Expert Paediatric Working Group. 5. OSOT recommends that all clients with complete and incomplete spinal cord injury be defined with catastrophic impairment. This provides access to increased levels of medical and rehabilitation services that are typically required by this seriously injured population for both early medical and rehabilitation management and those ongoing needs experienced over the lifespan. 6. In the spirit of assuring fairness so that individuals who are the most seriously injured in motor vehicle accidents receive appropriate treatment, OSOT recommends that the criteria 2 (d) (for TBI in adults if interim CAT impairment approved) be amended to require; a) that an individual be admitted to a hospital and have positive findings on CT, MRI or PET scan or any other braining imaging technology indicating intercranial pathology that is the result of the accident. b) Catastrophic impairment, based upon an evaluation that has been in accordance with published guidelines for a structured GOS-E assessment (Jennett, B. and Bond, M., Assessment of Outcome After Severe Brain Damage, 49 Lancet i:480, 1975) , to be: a.) Vegetative (VS) after 3 months or b.) Severe Disability Upper (SD+) or Severe Disability Lower (SD -) after 6 months, or Moderate Disability Lower (MD-) after one year due to documented brain impairment. 7. In the spirit of assuring fairness so that individuals who are the most seriously injured in motor vehicle accidents receive appropriate treatment, OSOT recommends that the criteria 2 (d) (for TBI in adults if interim CAT Impairment status not approved) be amended to require; a) Catastrophic impairment, based upon an evaluation that has been in accordance with published guidelines for a structured GOS-E assessment (Jennett, B. and Bond, M., Assessment of Outcome After Severe Brain Damage, Lancet i:480, )49 1975 , to be: i. Vegetative (VS) after 3 months or ii. Severe Disability Upper (SD+) or Severe Disability Lower (SD -) after 6 months, Moderate Disability Lower (MD-) and Moderate Disability Upper (MD+) assessment which may include neuropsychological assessment in combination with cognitive/functional assessment, which must include client effort and symptom validity measures. 8. The Panel has recommended that a child admitted to a special trauma or rehabilitation centre. We position that an adult with a TBI admitted to an in- 20 patient neuro-rehab program should automatically be deemed CAT or at very least interim CAT. 9. Include MD-upper as the cut-off level of disability identified by the GOS-E for the purposes of determining CAT impairment. 10. OSOT recommends that, rather than using an in-patient stay as a secondary criteria for MD - and potentially MD+, the person should undergo assessment which may include neuropsychological assessment in combination with cognitive/functional 11. Until such time that evidence disproving catastrophic impairment for individuals experiencing both physical and psychological disabilities is provided, OSOT maintains the position that physical and psychological disabilities should be combined. Guidance should be sought from legal precedent. Further study is recommended. 12. OSOT supports the need for the interim determination to ensure access to early rehabilitation which promotes maximal medical recovery for persons with traumatic physical impairments and urges government to adopt this recommendation. 13. An expert panel should be struck to investigate a 2(f) determination with in-depth study regarding the psychiatric conditions typically arising from trauma. 14. OSOT recommends that chronic pain disorder combined with a GAF score of 50 or under be considered catastrophic. 15. Should the government concur with the panel‟s findings about relying on the GAF Assessment, OSOT submits that the GAF cut-off should be 50 rather than 40. A GAF score of 50 describes “Serious symptoms (e.g., suicidal ideation, severe obsessional rituals, frequent shoplifting) OR any serious impairment in social, occupational, or school functioning (e.g., no friends, unable to keep a job).” This would indicate a need for a substantive level and duration of treatment 16. In the spirit of assuring fairness so that children who are the most seriously injured in motor vehicle accidents receive appropriate treatment, OSOT recommends that the criteria 3 (i) (a) and (b) be replaced with: a) Admission to a hospital and have positive findings on CT, MRI or PET scan or any other braining imaging technology indicating intercranial pathology that is the result of the accident. 17. That if the KOSCHI is to be administered to a child after 6 months, the KOSCHI should be administered by a physician with paediatric experience and a health professional approved to complete an Attendant Care Assessment. Those performing the Attendant Care Assessment must have clinical paediatric TBI and paediatric attendant care assessment experience. All assessors should be also be provided with all the relevant documentation available. The physician and/or neuropsychologist input is needed in order to clarify the diagnosis, and that the problems experienced are related to the accident. An Attendant Care Assessment (which according to the SABS can only be done by an OT or Nurse) is needed in order to obtain an objective measure of the attendant care required, including an opinion on the number of hours during the waking day the child requires supervision/actual help for physical, cognitive and/or behavioural impairments, and 21 an opinion on whether that care is considered normal parenting, or over and above normal parenting, based upon the age of the client). 18. OSOT supports further study of the psychometric properties of the KOSCHI. In this regard, we propose that the GCS be used until such a time as the KOSCHI has been shown to be a valid and reliable outcome measurement assessment tool. 19. We recommend that children with subtle injuries that will become serious sources of impairment over time will need access to a CAT attendant care/KOSHI or adult CAT criteria assessment to be assessed for eligibility for CAT designation and should have access to such assessment until the age of 21. OTs recognize that some children will have a delayed manifestation sometimes spanning decades in the case of infants whose impairments of cognition, emotion or behavioural regulation may not fully express themselves until late teen years. 20. OSOT recommends that children be assessed with the KOSCHI as early as is valid so as to enable early identification of their status. 21. That children with a significant pre-existing diagnosis at the time of the injury still be considered catastrophic based on their presentation and clinical findings and not be excluded from this group. The Ontario Society of Occupational Therapists is pleased to extend the views of its members on the final recommendations of the Expert Panel on Catastrophic Impairment. Occupational therapists recognize the need for early, intensive medical and rehabilitation interventions and the assistive devices, attendant care, home modifications, etc. that seriously injured individuals often require – indeed OTs engage with these clients around these very needs! In light of the recent regulatory amendments, the Society is pleased that FSCO has moved forward quickly to review the definition and determination process for serious injuries that result in catastrophic impairments. We remain committed to assist as work proceeds to further this initiative that will ensure that those most seriously injured in motor vehicle accidents in Ontario receive the care and supports they need. For further information or question, please contact: Christie Brenchley, Executive Director Ontario Society of Occupational Therapists 55 Eglinton Ave. E. Suite 210 Toronto, Ontario M4P 1G8 416-322-3011 ext 224 cbrenchley@osot.on.ca 22