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Neurological E L Autonomic dysregulation Dystonias Restlessness/agitation Seizure N E C Pediatric Palliative Care Restlessness/Agitation Provide routine, comfort and support Decrease stimulation Pharmacologic Non-pharmacologic Relaxation Massage E L N E C Pediatric Palliative Care Seizures E Frightening for parents to witness May be caused by an electrolyte imbalance, drug toxicity, meningitis, or CNS tumor Tonic/clonic or may present as staring/eye deviation, lip smacking or other repetitive movements L N E C Pediatric Palliative Care Dyspnea E L Distressing shortness of breath Breathlessness Associated diseases N E C Pediatric Palliative Care Causes of Dyspnea E Major pulmonary causes Major cardiac causes Major neuromuscular causes Other causes L N E C Pediatric Palliative Care Assessment of Dyspnea Use subjective report Clinical assessment Physical exam Diagnostic tests E L N E C Pediatric Palliative Care Treatment of Dyspnea E Treating symptoms or underlying cause Pharmacologic treatments L N E C Pediatric Palliative Care Treatment of Dyspnea Non-pharmacologic Oxygen Pursed lip breathing Energy conservation Fans, elevation Counseling Other E L N E C Pediatric Palliative Care Freedom E L N E C Pediatric Palliative Care Terminal Respirations E Agonal or cheyne-stokes breathing Use an anti-cholinergic medication for excess secretions Provide family support L N E C Pediatric Palliative Care Fathers Watch E L N E C Pediatric Palliative Care